Story
Daisy lived a short but wonderful life. Her smile was infectious and she filled her family and friends with such joy. Sadly Daisy lived with mitochondrial disease, its a cruel deteriorating disease that eventally took her life on the 28th of September 2019 a month before her 7th birthday.
As a group of school run mums we have seen Daisy's families journey with Mitochondrial disease and we know how much the Lily Foundation supported them and what wonderful work they do as a charity so we wanted to do something challenging to raise some money for them in Daisy's memory.
Our plan is to team up with Daisy's granny (Namoo aka Zelda) for a SKYDIVE This summer 2020(date to be confirmed) We will be organising other fund raising events locally in the run up to our skydive (watch this space)
Thank you.
Sam, Claire, Paula, Cheryl (not diving)
A little bit about The Lily FoundationThe Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.