Story
As you may know Euan and I lost our Dad early in 2009. He died a month before Euan and Rachel’s wedding, and a few months before Finlay was born. He was 53.
What you may not know is why he died. Dad lived with a disease of the heart muscle, Cardiomyopathy. I appreciate you may not have heard of it. The perception held by some is that Cardiomyopathy is a rare condition, not so. A form of the disease, Hypertropic Cardiomyopathy is the most common cause of sudden death in people under the age of 35.
Currently there is no specific treatment for the form of the disease Dad had. Early recognition of the signs of cardiac dysfunction and prevention of subsequent complications is key. Medications and devices that have been used in heart failure have been used with good results in non-compaction cardiomyopathy, and in this sense the screening of family members of affected individuals is important and may alter the outcome of this condition.
The CMA works to raise awareness of cardiomyopathy among health professionals and the general public; It campaigns for the screening of close family relatives of people affected by Cardiomyopathy; It has developed a range of information to help patients and their families.
It costs over £410,000 to run the charity each year and they receive no Government Funding, but instead rely solely on the generosity of supporters and fundraising.
In order to contribute to this cause I will be completing various challenges over the coming years and be looking to you to provide monetary support. Some of these are dafter than others, and some have been more thoroughly thought through than others, but I felt that the GNR to be a good way to kick off my fledgling fundraising career. Please take a minute to give a few quid.
Rollo
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