Andrew, Stephen and Steves' page

Andrew Pond is raising money for Cystinosis Foundation UK

Participants: Stephen McVeigh and Steve Redgers

£2,820
raised of £1,500 target
Donations cannot currently be made to this page

Isle of Wight Challenge 2018 · 5 May 2018 to 6 May 2018 ·

Cystinosis Foundation UK

Verified by JustGiving

RCN 1074885
We help and support cystinosis sufferers to increase understanding of cystinosis

Story

Thanks for taking the time to visit my JustGiving page.

My beautiful little daughter Ellie has a very rare genetic disease called Cystinosis. Basically what this does is try to attack every cell in her body and would eventually lead to organ failure and death if not managed every day with 16 doses of medication and supplements. 

The charity is run on donations only so please help out as much as you can and support us on our epic walks.

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About the charity

Cystinosis Foundation UK

Verified by JustGiving

RCN 1074885
Provide support to anyone diagnosed with cystinosis, as well their families and friends Highlight the disorder to the medical profession and the wider community Support research into the treatment of cystinosis Work with other organisations to understand more about metabolic disorders

Donation summary

Total
£2,820.00
+ £648.75 Gift Aid
Online
£2,820.00
Offline
£0.00

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