Andrew Nolan

Burnham Juniors Coaches Vs Parents Charity Football Match

Fundraising for Alex, The Leukodystrophy Charity
£4,022
raised of £1,000 target
Burnham Juniors Coaches Vs Parents Charity Football Match, 11 December 2021
Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
We provide support to families affected with leukodystrophies

Story

BJFC Coaches vs BJFC Parents

***Charity Update***

Two of our younger players (brothers) within Burnham Juniors have recently been diagnosed with ALD (Adrenoleukodystrophy).

https://www.alextlc.org

This is a genetic disorder which only affects males. It is diagnosed from between the ages of 4-early teens and is a neurological disorder which affects the child’s functions make them eventually totally dependent and leading to premature death.

The family feel the spotlight being on them may be too emotional but would love to raise awareness and help those who have, and are currently helping them and the boys.

The link attached explains more in detail about the disorder so you can get a sense of what the parents and beautiful boys are going through at this time.

These are two of our own so let’s get behind this wonderful cause and raise as much as we can

💙🤍💙🤍

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity. Your donations make our work possible.

Share this story

Help Andrew Nolan

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
£4,021.53
+ £688.75 Gift Aid
Online donations
£4,021.53
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.