Andrew Deane

Andrew's page

Fundraising for Parkinson’s UK
£3,306
raised of £1,500 target
Donations cannot currently be made to this page
Event: SimplyHealth Great North Run 2018, on 9 September 2018
Quality Services
Campaign by Parkinson’s UK (RCN 258197 and Scotland SC037554)
When you’re diagnosed with Parkinson’s you need a fantastic team around you of health and social care professionals. We are determined to make sure no matter where you live, that team will be there.

Story

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This is going to be one of the biggest challenges I have taken on. I have run the GNR three times before - 2012, 2013 and 2014 - dressed as Star Wars characters (Darth Vader and Stormtrooper). They were relatively challenging but this year will be a different challenge.

In December, I was diagnosed with Young Onset Parkinson's Disease. I have been under the care of the Newcastle Hospital team - who have been absolutely fantastic. The diagnosis came as a surprise even though the symptoms have been there for years and I should know better as a consultant geriatrician! However, I considered PD to be a diagnosis of the older population - therefore, didn't really consider that my symptoms were PD - even though I've had classic symptoms! It started with lack of sense of smell (end of 2014) and my walking hasn't been right for years. Last year, I developed a foot drop on my right side whilst training for the Edinburgh Marathon. That is when I saw an excellent physio who helped get me through that challenge. I did do the marathon in May 2017 but struggled with stiffness of the right hip and ankle.

My main symptoms are stiffness in right side of body - mostly hand and foot/ankle. Making it very difficult to write and type. And also I struggle to run! I get stiffness of my right hip and arm as well, which I have noticed whilst running for years. I've found Pilates helpful, started swimming and have a personal trainer. I have started treatment (Rasagiline and Sinemet) and am noticing some improvements but still a long way to go.

I've decided to do the GNR 2018 for Parkinson's UK to raise money for a great charity and is my way of telling people I have PD. I have been really touched by the support of everybody I've told. There are a number of people who are joining my running team for PD and I am hoping to add their names to my team as they get their places sorted.

It is strange being a doctor who has done PD clinics and  is now a PD patient. I am recording videos of my experience with PD and will eventually post them - watch this space if you are interested in seeing these videos.

Thanks for reading this and supporting in either thoughts, prayers or donations!

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About the campaign

When you’re diagnosed with Parkinson’s you need a fantastic team around you of health and social care professionals. We are determined to make sure no matter where you live, that team will be there.

About the charity

Parkinson’s UK

Verified by JustGiving

RCN 258197 and Scotland SC037554
Anyone can get Parkinson’s. It gets worse over time and there’s no cure. Yet. Funding research into the most promising treatments, we’re getting closer to a cure. Until then, we're improving life for people with Parkinson’s, and the people in their lives. Together we'll find a cure.

Donation summary

Total raised
£3,305.94
+ £656.04 Gift Aid
Online donations
£3,305.94
Offline donations
£0.00

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