Story
Facts:
Brain tumours are the biggest cancer killer of children and adults under 40’s.
At least 88,000 children and adults are estimated to be living with a brain tumour in the UK currently.
Over £700m is spent on cancer research in the UK every year, yet less than 3% is spent on brain tumours.
Our Team:
After our 1st Twilight Walk in 2018, we decided it was time for the walking boots to return!!
Our team, The Tumournators is made up of my husband Darren, and our daughters, Lauren and Nicole and some of our very dear friends Sallie, Karen and Jade who have given us much support throughout our journey. Together we will all be walking the 10K London Twilight Walk for the Brain Tumour Charity.
Sadly this event has now been re scheduled from October 2022 to March 2023 due to low numbers. On a positive, this gives us more time to raise those vital funds, so please everyone donate, no matter how small every penny counts.
Our team name is the “Tumournators”.
Lauren, my daughter was diagnosed with a low-grade brain
tumour and epilepsy back in 2008. Since her diagnosis Lauren has been very private about her condition, she has wanted to be treated the same and for people to behave no differently towards her. You can read Lauren’s story of her journey further below.
The charity has supported us in many ways; information days
provided us with facts to enable us in understanding brain tumours, development of MRI scanning, treatment options etc and research projects.
Lauren was able to share amazing days out organised by the charity with other children and their families affected by brain tumours, she is also part of the recently formed Brain Tumour Charity Young Adult’s Group where she has made a lifelong friend.
The Brain Tumour Charity is committed to saving and improving lives through pioneering research projects, this brings us, and others, hope in so many ways.
My story by Lauren:
Age 8 I was diagnosed with epilepsy followed by the discovery of a brain tumour in the same year. As I was a child I can’t remember life without medication, the side effects with it and fear of seizures.
Over the next 9 years I had regular scans to monitor the tumour, still being told that an operation was not an option.
Age 16, my seizures became uncontrollable and it was at this time
I was offered an operation to remove some of the tumour, with the aim of improving my epilepsy.
In February 2017 (aged 17) I had an awake craniotomy operation;
this allowed my neurosurgeons to remove part of my tumour whilst I was awake to avoid any permanent brain damage. I had the amazing result of removing the bulk of the tumour, and to date controlled seizures. Immediately after the operation I had lost all movement in my right-hand side and had limited speech to only a few words.
I had 6 months of rehabilitation and regained all my movement and
speech. I am now living my life to the full and doing things I never thought I would do a few years ago. I will still have regular scans as there is some unknown activity and remain on epilepsy medication.
The charity has allowed me to meet a very close friend through the
young adults meet ups.
Please support us by contributing to this amazing charity that funds vital research and support.
On behalf of all of us, we thank you for taking the time in reading our fundraising page.
Please donate whatever you are able to in these hard times, and feel free to share amongst friends.
Thank you from the bottom of our hearts.