Progressive Supranuclear Palsy (PSP) is a neurological condition caused by the premature loss of nerve cells in certain parts of the brain. This affects; mobility and movement, behaviour and personality, speech, communication and vision, to name but a few.

PSP is a very individual condition and every case is different.

My mum Joyce sadly lost her 10-year fight with this condition and passed away February 2021. During the Latter stages of the illness communication was extremely difficult so we relied upon face2face visits.  As my parents live in Oxfordshire and amid the Covid lockdowns, visits to her care home were not allowed. Not even for my father. . . At the time of her passing, family members could only visit individually. And some of her children did not even get the chance to say goodbye. Circumstances which unfortunately have become far too familiar to many of us.

PSPA is the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We provide information and support for people affected by PSP & CBD whilst funding research into the causes, treatment, and eventually a cure. Together we can stop PSP & CBD in their tracks.