Andrea Gerring

Andrea's Southport Triathlon

Fundraising for Muscular Dystrophy UK
£985
raised of £750 target
Donations cannot currently be made to this page
Vital Events Southport Triathlon, 21 May 2017
Bertie's Buccaneers
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Bertie's Buccaneers was set up to fundraise for research into Ullrich congenital muscular dystrophy which Bertie was diagnosed with in 2014.

Story

Muscular Dystrophy UK (MDUK) is the charity for 70,000 people living with muscle-wasting conditions. MD is a muscle wasting disease,  meaning that over time all of the body's weaken - including heart and lungs. 

I have known Bertie since he was born, and he is a happy and engaging child. When he was 2, he was diagnosed with Collagen VI myopathy.  He is now five, and is doing really well at school. He has a fantastic family, but life can be hard. 

Thanks to funding for the Ullrich CMD appeal and Collagen VI Alliance, in recent years researchers have discovered a lot about what is happening inside the cells of people with Ullrich CMD. One of the findings is that structures in the cells called mitochondria – which are the ‘batteries’ supplying energy – are not functioning correctly. Two drugs have shown promise – Omigapil and Debio 025. A company called Santhera is conducting a clinical trial of Omigapil in the USA. This trial will involve children with CMD, including Ullrich CMD.

As with anything, the research needs to be funded.

Anything you can spare to sponsor my triathlon will help MDUK with their research.

Lets find a cure, for Bertie and everyone else with a muscle wasting condition!

Thank you

Andrea

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About the campaign

Bertie's Buccaneers was set up to fundraise for research into Ullrich congenital muscular dystrophy which Bertie was diagnosed with in 2014.

About the charity

Muscular Dystrophy UK

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RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£985.00
+ £252.50 Gift Aid
Online donations
£985.00
Offline donations
£0.00

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