Story
On June 26th I will be walking 100km (62 miles) in 24 hours as part of the Cotswold Way Challenge in support of Felix and Duchenne UK.
Felix is a quirky, funny 9-year-old who I support closely in his school environment. He needs me because he has Duchenne Muscular Dystrophy (DMD), a rare and progressive muscle wasting condition which makes each step more difficult than the last.
We all say life is short but for Felix that really is the case. Boys with Duchenne are usually wheelchair bound by the time they turn twelve and have a life expectancy of early 20s.
In the short time I have known Felix, he has taught me so much and changed my outlook on life for the better.
The hardest thing for me to comprehend about Felix's condition is that his reality in 10 years time will be the complete opposite of my current reality. Where I am overwhelmed with opportunities and decisions, Felix could face having all this taken away from him.
In 2013, Duchenne UK set their mission to end Duchenne Muscular Dystrophy in 10 years. This means there are only 2 years left and they have come so far that now, fundraising for Duchenne UK is more important than ever. The co-founders of the charity also have sons with DMD, so the stakes are extremely high.
In 10 years, I want to see Felix live his 19th year as I live mine now. Your donation could be the difference in ending Duchenne in 2 years or 10. I want to help save the lives of this generation of the world's strongest boys.
Please donate as generously as you can and help me in this fight to end Duchenne!
For more information on the charity's invaluable work visit www.duchenneuk.org and if you want to see the walk I am doing for those who can't, visit www.cotswoldwaychallenge.com
Thank you for taking the time to read my page and supporting Duchenne UK :)
~ Amber x