The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today. My son Harry who is 21 years old suffers from a form of Mitochondrial Disease known as MERRF. Harry is a fantastic, son who endures this debilitating disease on a daily basis. Harry remains truly positive and hopeful; that some day there will be a treatment available that will help him with his daily struggles. Currently there isn't any treatment to help him and no sign of a cure. Please Help!!