What if your loved one had a disorder so rare that no one had ever heard of it before -- let alone knew how to treat it? For many families with Bohring-Opitz Syndrome, Shashi-Pena Syndrome, or Bainbridge-Ropers Syndrome, this is their reality. The ASXL Rare Research Endowment Foundation is trying to change that. Your contribution helps support research and education that improves the quality of life for people living with an ASXL syndrome and their families. From research grants for scientists to educational events for families, your gift to the ARRE Foundation is supporting a brighter future full of knowledge and hope.