Alice Hayes

Supporting the next generation of adults living with Duchenne

Fundraising for Action Duchenne
£2,779
raised of £2,000 target
Donations cannot currently be made to this page
Event: Schneider Electric Paris Marathon 2023, on 2 April 2023
Funding support projects to help young people living with Duchenne muscular dystrophy as they transition to adult life.

Story

Thank you for helping me to support the life-changing work of UK charity, Action Duchenne. This April, I will be running the Paris Marathon. As this is my first Marathon, I wanted to run it for a special charity which is linked closely to the Primary School I work for. 

Over the next few months, I will be building my long training runs up to 26 miles and will regularly post to keep you updated on my progress. Alongside this, I will be hosting events at the school, so keep an eye out on my page. 

Your donation will help fund projects which will empower young people living with the rare muscle-wasting condition, Duchenne muscular dystrophy. Duchenne muscular dystrophy is a rare genetic condition caused by mutations in the dystrophin gene, which makes muscles more susceptible to damage and leads to muscle wasting over time. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens. The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments. There is no cure. Thank you for your donation to help power Action Duchenne's vital work.

Thanks

Alice

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About the campaign

Funding support projects to help young people living with Duchenne muscular dystrophy as they transition to adult life.

About the charity

Action Duchenne

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We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Donation summary

Total raised
£2,778.50
Online donations
£2,778.50
Offline donations
£0.00

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