Colleen Pentony

Walking 79km for our Warrior Alfie

Fundraising for Fight For Alfie
£3,779
raised of £3,700 target
Donations cannot currently be made to this page
Walking 79km for our Warrior , 18 March 2023
Fight For Alfie

Verified by JustGiving

RCN 107869
We raise funds to save the lives of those with Duchenne

Story

Hi every my next challenge Walking 79km for our Warrior, will take place on the 18th march finishing  on Mother's day the 19th march 2023 to represent the strength that all Mothers have, but especially those whose children have different abilities.. 

I intend to walk 79km for my baby. This is to represent the 79 Exons in the dystrophen gene. A mutation in anyone of these Exons can cause Duchenne. I want to finish it in 15 hours 43 minutes, as this is the exact time I got the call that changed my life forever with Alfie's diagnosis. This is to raise vital funds for Alfie who is fighting this cruel disease Duchenne muscular dystrophy, With your help and support and generosity, I hope to get funds to help him continue getting to America for his infusions to help slow down the progression of this cruel fatal disease and give him a fighting chance at the life he deserves. I would also love you all to join me on the last few miles of my journey to show all your support to Alfie and our family. Please support me in any way you can by sharing this post or donating anything small via sponsor cards or via the just giving link. Let’s all keep fighting for our very own Newry Hero Alfie and help him continue his much needed treatments in America. Thank you all 💚

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About the charity

Fight For Alfie

Verified by JustGiving

RCN 107869
Created via charity sign up service.

Donation summary

Total raised
£3,778.16
+ £316.54 Gift Aid
Online donations
£3,778.16
Offline donations
£0.00

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