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Alexander is a happy 5 years old who has cerebral palsy, dystonia and epilepsy.

He enjoys being out and about and going to school.

That’s him in a nutshell but here is a bit more of his story!

Alexander decided to arrive at 24 weeks while we were on holiday in Mallorca!

We eventually got repatriated back to the UK after 9.5 weeks. He stayed in hospital for another 6.5 weeks and then we finally came home!

All was going well until at 9 months old he developed Infantile spasms which is a rare form of epilepsy and causes developmental delays.

We stayed in hospital for a month while we tried to gain control and we did have a brief spell in remission only for Alex to relapse again a couple of months later.

We tried various drugs but none worked so we tried the ketogenic diet which helped him enormously. He went from over 300 spasms a day to none! This had a huge impact on Alexander as now he can focus on enjoying school and his activities. We have now weaned off keto and are trying to keep his epilepsy under control with medication.

However, Alex has another challenge that is impacting him. Dystonia. It is getting worse and is limiting the little mobility he has. His left hip has become dislocated due to his muscles pulling it out. This is making sitting for Alex difficult and we are trying to find ways to make him comfortable and ease his dystonia.

But as he gets bigger we are finding more things he needs or therapies which may help him.

This is why we are starting to fundraise for him. We want to be able to help him as much as possible now and in the future for whatever he may need!

If you are able to help us it would be amazing as we don’t know what the future holds but we do know we want to everything we can to make it more comfortable and enjoyable for him and our family x

Alison, Matt, Alexander and Imogen

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.

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