Alex and lilys dravet syndrome uk challenges

Alex Wareing is raising money for Dravet Syndrome UK
£1,705
raised of £1,000 target
Donations cannot currently be made to this page

Climb Snowdon 2021 - 11th September · 11 September 2021 ·

Climbing Snowdon is a fantastic challenge and will be a memorable day for all. Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education, awareness and support.

Story

As most of you are well aware, our son Jack suffers from a life limiting form of epilepsy called Dravet syndrome. Everyday of our lives we are forever worrying about when the next seizure will strike and how it could effect him. We are not the only family who feels this way that is why we are continuously fundraising for Dravet syndrome UK. They do incredible things for family's like ours who have children who have to live with the etremely rare condition. 

Over the next few months lily and I have decided to take on a variety of challenges ranging from a 108 mile ultra marathon race to climbing Snowden plus many other challenges in between. 

Due to covid 19, this even was cancelled last year like many other events. Because of this, alot of charities are struggling and we now feel the urge to help them in the same way they help our son.

Any donation that we raise could help our family and other families across the UK who have children who suffer from Dravet Syndrome. 

 Thanks for taking the time to visit my JustGiving page.

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Donation summary

Total
£1,704.50
Online
£1,704.50
Offline
£0.00

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