Hello, I’m Alex from Peterborough, UK 👋

On Sunday 21st April 2024, I am going to be running the London Marathon (my first ever marathon race!)

I am running in loving memory of my Mum, Janis, who sadly passed away in November 2017 from a rare disease called Progressive Supranuclear Palsy (PSP) aged just 56. As far as we know the second youngest woman in the UK to pass away from the disease.

For those of you who may not have heard of Progressive Supranuclear Palsy (PSP) before, PSP is a rare neurological condition that can cause problems with balance, movement, vision, speech and swallowing. It's caused by increasing numbers of brain cells becoming damaged over time.

But at the moment there is no cure for this disease.

The PSP Association estimates there are around 4,000 people with PSP living in the UK, but it's thought the true figure could be much higher as many cases may be misdiagnosed.

However, The PSP Association remains the only UK charity dedicated to improving the lives of people living with PSP. They do a superb job providing those diagnosed and their families with enough information to help understand the condition and ensure those living with PSP have the most comfortable journey. Funds sent to The PSP Association help to find various treatments and fund vital research for the end goal - a cure.

Thank you to everyone who has donated so far!

The money raised on this page is going straight to this wonderful charity and it is so appreciated.

This is for you Mum x

Alex