Story
In 2021, my best mate Dom told me that his father-in-law Kev had been diagnosed with MND.
Kev is a good friend, he is also Husband, a Dad, a Grandad and a great friend to many. The news of this diagnosis has devastated him and everyone who knows and loves him. Together with Dom, Sam, Ben and James, we all decided to enter the Great North Run to raise as much money and awareness as possible for the MND Association. Your support would mean a lot.
MND INFORMATION
Your chance of winning the National Lottery jackpot is 1 in 45 million (and yes I still play it!). Your chance of getting motor neurone disease is 1 in 300. Surprised? I was too. I thought it was a really rare disease. It is compared with cancer and heart disease, but it’s not that rare is it? Every year in England about 1,500 people are newly diagnosed with MND. At any one time only about 5,000 people in the UK are suffering with MND but that’s because we don’t survive for very long.
Receiving a diagnosis of motor neurone disease is unbelievably hard news. There is no cure. There is no effective treatment. Average life expectancy is 3 years from onset of symptoms.
But it does not need to be this way in the future IF we put enough resource and funding into medical research.
HOW YOUR MONEY HELPS
The MND Association are an amazing organisation focused on improving access to care, research and campaigning for those people living with or affected by MND in England, Wales and Northern Island.
- £10 will provide an information pack for someone newly diagnosed with MND.
- £75 will fund a researcher for half a day.
- £160 will l buy a specialist communication app enabling someone who has lost the ability to speak to continue to communicate with others.
- £600 funds a seat riser, allowing someone with MND to raise their wheelchair so that they can reach shelves and talk to someone at eye level.
- £2,250 provides a text to speech device, to give someone with MND the ability to continue to communicate with their loved ones.
- £4,000 funds a person with MND to participate in a clinical trial for a year, bringing us closer to a cure.