Alex Hartley

Alex's Bike tour for Brittle Bone Disease

Fundraising for Brittle Bone Society (BBS)
£725
raised of £600 target
Donations cannot currently be made to this page
In memory of Vicki Hartley
Brittle Bone Society (BBS)

Verified by JustGiving

RCN SC050854
We help people with Osteogenesis Imperfecta to be independent and feel less isolated

Story

Dear Reader - thanks for visiting my JustGiving page!

I've set this up in memory of my late Aunt - Vicky. For those of you who didn’t get the chance to meet her, she was a wise cracking, fun-loving cricket addict with no small rebellious streak, and she could teach all of us a thing or two about how to enjoy life.

She had a genetic condition called Osteogenesis Imperfecta (OI) - commonly known as Brittle Bone Disease. This meant a few things. One was that she was given only months to live at birth - not much was known about her condition back then - due to her bones constantly fracturing. Another was that she spent much of her life in a wheelchair, and in pain. However, she was often more cheerful than the rest of us manage to be - and fulfilled many of her life's ambitions - watching cricket in the west indies was one of her favourites. She was a true inspiration to us all.

OI / Brittle Bone Disease is rare - affecting approximately 1 in 20,000 births - and affects people in a range of different ways. The Brittle Bone Society (BBS) work in the UK to help people get the right wheelchairs and other equipment to live life to the full. Vicky supported the BBS throughout her life, and it means a lot to me to be able to support them now.

Here is a short youtube video describing what the charity do.

This summer, I will be going on my first bike-packing tour. This means camping. We (there’s four of us) have booked a ferry to St Malo in Northern France, and we have 6 days to ride as far as we can before we loop back for the ferry home again. About all I know so far of this is that I will be riding up hills with a tent, sleeping bag, food, lock, lights, spare clothes, tools, spares… the list goes on. And I’m of course I have a trendy town bike, which could yet turn out to be wholly inappropriate for the exercise. Those of you who know me will be aware that I’m something of a ‘fair weather’ cyclist – excepting a week of Colorado mountain bike madness last year I am more used to a sunny summer Sunday pootle followed by a cappuccino – so this could be a bit grittier than I have become accustomed to.
We haven’t quite finalised our route yet, being very blokeish about this, but we’ll see if we can cover 600KMs - I’ve set a fundraising target of £1 / KM….. I will let you know how we get on!

Thanks for reading and thanks in advance for your donations!

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About the charity

Brittle Bone Society (BBS)

Verified by JustGiving

RCN SC050854
The Brittle Bone Society provides support for people affected by the rare, and painful bone condition Osteogenesis Imperfecta. It provides specialist advice, support and equipment to people with the condition, their families and carers, medical and other professionals.

Donation summary

Total raised
£725.00
+ £107.50 Gift Aid
Online donations
£725.00
Offline donations
£0.00

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