This is not about my story or journey. This is about children who are  born with, or develop a terminal condition. The emotional and physical impact affects the whole family and can be overwhelming. Demelza, focus on supporting each child, young person and family they work with to achieve the best possible quality of life. As specialists in care for young people and family support, they use their outstanding knowledge, experience and expertise to help families enjoy their lives together. Amazing Courage that just pulls at my heart strings.