Hi,
I am running the GNR this year to give something back to the Aplastic Anaemia Trust. They have been an amazing support for my best friend and her family when her youngest daughter was diagnosed with it in 2019
Aplastic Anaemia is an extremely rare disease, with only 30/ 40 children being diagnosed in UK each year. It is the failure of a persons bone marrow to make platelets, red and white blood cells, causing potentially life threatening bleeding as well as a severely compromised immune system leading to repeated infections, many of which can also be life threatening.
Maisy was 9 when she was diagnosed with Aplastic Anaemia in 2019. She became very ill, very quickly and following many blood transfusions and 6 months in isolation hospital, she finally received her bone marrow transplant, which is hoped to be a cure, in 2020. The Aplastic Anaemia Trust have supported the family throughout, giving them access to child friendly information, and allowing both Maisy and her sister, Izzy to find out more about the disease from others going through it.
As well as raising funds to carry out vital research, the Aplastic Anaemia Trust supports families and individuals throughout their treatment journeys and beyond. They provide emotional support, information and resources for schools, families and friends and have also been able to provide practical support from a benefits advisor while Maisy’s mum was unable to work while she cared for Maisy
Please help me give something back, and to help other families that need support
Thank you ,
Abi x