Vir Singh

#oneRAREstep

Fundraising for The AADC Research Trust
£933
raised of £70,000 target
Donations cannot currently be made to this page
Gene therapy for AADC research , 23 August 2019
#oneRAREstep
Campaign by The AADC Research Trust (RCN 1114367)
WITH YOUR HELP... The AADC Trust is launching the #oneRAREstep Campaign to raise funds for our AADCd children to access potentially life saving & transformative experimental brain delivered AAV2-hAADC Gene Replacement Therapy Treatment. THANK YOU

Story

He is my son Vir Singh.He suffers from AADC, a rare neurological disorder.Neither can he walk or talk,nor can he raise his head.There are 16 kids in the world suffering from this disease.There were no approved treatments for AADC deficiency. But now the lead collaborators have developed a gene therapy technology to restore AADC enzyme production in the brain which could boost his body movements.It is for this that we need to take him to Poland.The total cost has been estimated around 70k euros.My husband and I can't afford all by ourselves.Help us raise funds for him.Help him live a normal life like all of us.Amount doesn't matter,your little contribution will be of great help to us.Share this post everywhere,someone might help even if you share this post,thank you : )


#HelpVirsmile.

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About the campaign

WITH YOUR HELP... The AADC Trust is launching the #oneRAREstep Campaign to raise funds for our AADCd children to access potentially life saving & transformative experimental brain delivered AAV2-hAADC Gene Replacement Therapy Treatment. THANK YOU

About the charity

The AADC Research Trust

Verified by JustGiving

RCN 1114367
AADC deficiency is a rare disabling brain disease. More than 100 children in 30 countries have been identified with the disease. It's proved fatal for some of them. The AADC Research Trust is a children's charity funding research, supporting affected families and promoting global disease awareness.

Donation summary

Total raised
£932.73
Online donations
£932.73
Offline donations
£0.00

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