2 of my best friends received the heartbreaking diagnosis in 2017 that their 2 amazing sons (Owen and George) have Duchenne Muscular Dystrophy.  Kirsty, Nick, Owen & George have been and continue to be a complete inspiration in how they have been handling all the challenges this has thrown at them.  Alongside managing the complications that Duchenne means for them all in day to day life they have managed to raise a phenomenal amount of money for Duchenne UK for research into a cure for the disease (where there is hope) and improved treatments to ensure that all the children impacted by this disease have the best possible quality of life and there is hope for every family impacted by this devestating disease.

I have committed to do 1000km of cycling as part of the Duchenne Dash at home between 30th April and 11th June and am going to do the New Forest Marathon in September to raise funds for Duchenne UK.

I am going to match the donated total up to £2,000 and then my employer will match my donation meaning that the impact of anything you can give will be enhanced and really make a difference and hopefully hit my £6,000 target and beyond.

The details of Project Go in Nick and Kirsty's own words is in the link below

Project GO | Duchenne UK

And details on Duchenne Uk:

Home | Duchenne UK

Project GO supports Duchenne UK a charity that has one clear aim to end Duchenne muscular dystrophy (DMD). DMD is a devastating muscle-wasting disease. It is the most common and severe form of muscular dystrophy. Diagnosed in childhood, it mainly affects boys. Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development. Together, we will end Duchenne.