Sara Hunt

TEAM GOODRICH

Fundraising for Alex, The Leukodystrophy Charity
£340
raised of £500 target
Donations cannot currently be made to this page
Event: Bupa Great South Run 2009, on 25 October 2009
Participants: Greg Kat (doing the Great North Swim), Tyrone Thomas (doing the Great North Swim and the Great South Run), Sara Hunt, Gilly Cook, Claire Thornton, Jennifer King (all doing the Great South Run)
Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
We provide support to families affected with leukodystrophies

Story

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Team Goodrich is a motley collection of Goodrich school parents willing to sacrifice their shoe leather and sweat for ALD Life. This charity assists families living with a particularly cruel and devastating disorder, adrenoleukodystrophy, ALD, a rare, terminal brain disorder affecting apparently normal and healthy young boys. Within months these boys are stripped of all voluntary function leaving them unable to move, see, speak or swallow. They usually do not reach teenage. Sara Hunt is mother to two boys with ALD: Alex, her eldest, attended Goodrich until January 2001 when he was diagnosed. He quickly deteriorated and is now permanently at home in a semi vegetative state. Her younger son, Ayden, has just returned to Year 4 at Goodrich after a bone marrow transplant last year to prevent him from becoming like his brother after ALD was spotted in a routine scan. This is a very small charity desperately needing your help - please give as generously as you can!

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About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
£340.00
+ £84.62 Gift Aid
Online donations
£340.00
Offline donations
£0.00

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