Story
My son Connor was born with a rare Genetic liver condition called Caroli syndrome, a condition 1 in a million people get. it wasn’t until he was 18 that we found out he had it. In June 2020 he was placed on the Liver transplant list, the only but permanent cure for his condition.
Over the next 2 years we would go through 6 cancelled transplant surgeries, al while under the restrictions of Covid, we would not be allowed into the hospital with him. March 22, 2022, was his last call for transplant.
As we waited for call number 7, Connor slowly got worse and worse. The conversation of a live donor was mentioned. Never would we of thought that his Mum Michelle could be a possible match. Over 6 months she went through test after test, scan after scan, sometime having to travel halfway across the country for very specialist ones. Each time she passed the tests.
Just after Christmas 2023, the consultants at the Royal Free hospital & Leeds hospital agreed Michelle could be Connors Donor. On the 22 March 2023, 3 days after Connors 27th birthday, and exactly a year since his last call for transplant, the surgery happened.
Michelle went into surgery first, followed by Connor 2 hours later. By 10 o’clock that night it was all done and the road to recovery started. This operation would see 65% of Michelle's liver transplanted into Connor's. Connor's entire liver has now gone to medical research. We had a few bumps in the hours and days immediately after surgery, but both are now doing really well and back at work, their livers are now both fully grown.
I should have been running the London Marathon in April 2023, but I had 2 very special people to look after as well as still working, unfortunately something had to give so I decided to defer my marathon attempt to 2024, this also means they can both be there.
So, April 21st, 2024, I will be running the London Marathon for the British Liver trust. Without the research and work they do, operations like Connors could not happen. To all the Surgeons, Consultants, Dr’s & Nurses, the least I can do is do this little jog to help raise funds for your research to continue.