Story
Thanks for taking the time to visit my JustGiving page.
As you may know I managed to get one of twelve spaces in the ballot for the London marathon as a non elite wheelchair user (I shall be completing the course in my standard day chair).
I have decided to raise money for Reverse Rett in aid of Lily (Hope for Lily on Facebook). Reverse rett is a charity which works to speed treatments and find a cure for Rett Syndrome.
Rett Syndrome is a neurological or brain disorder which most often affects apparently healthy little girls around the age of 6-18 months. Onset can be sudden or more subtle. The condition usually follows a path of progression, where skills such as speech, hand use and mobility are lost. Most girls do not speak at all. Some have a few words. Some are left with some hand use. Some girls never walk, some girls learn to walk and lose it later and a few keep walking. There is no way to predict the severity of these different symptoms.
Thank you for any donation you have made!
Steve