Simon Millea

Simon Millea

Fundraising for Genetic Alliance UK
£1,435
raised of £2,000 target
Donations cannot currently be made to this page
Event: Brighton Marathon 2018, on 15 April 2018
Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We engage, support, research & campaign to improve policy & healthcare outcomes

Story

Hello friends, 

I had the ambition to run the Brighton Marathon, but it has defeated me twice. Through injury & personal circumstances I have not been able to ready my body for the endurance. However, I have not given up & I have made sure that I am still doing what I can to raise money for SWAN. I have run 7 races so far, but by the end of May/beginning of June (due to a training holiday in Tenerife) I will have completed more than 100 miles of races in the last 12 months.

The Why...?

Those of you who know me well know that I live with a lovely little family in London who have seen their smallest member afflicted with an unknown genetic condition. She is currently being supported by the amazing people at SWAN UK & Great Ormond Street to help understand what is going on. For those of you unaware, a child born with a SWAN (a Syndrome Without A Name), support is often hard to come by & funding is even less, as there is no name to put to what they have. With the condition being unknown, the prognosis is the same (if not always the worst of the worst) & this is often a terrifying message to receive as a parent. Although she is not mine; I dote on her like a sister & I have seen the impact her condition has had on two of my favourite people. I wanted to do something that would make even the smallest impact on their experience for the better & I need your help to make it happen!

These events are:

13/05 - Superhero Fun Run 10k - DONE!

17/06 - Crystal Palace 5k - DONE!

22/07 - Finsbury Park 10k - DONE!

22/08 - Brixton (Brockwell Park) 10k - DONE!

20/10 - Battersea Park 10k - DONE!

24/03 - London Landmarks Half Marathon - DONE!

19/04 - Victoria Park Half Marathon - DONE!

12/05 - Leeds Half Marathon - DONE!

15/05 - Crystal Palace 10k

22/05 - Hyde Park 10k

29/05 - Wimbledon 10k

02/06 - Wimbledon Half Marathon

Thank you to all those who have sponsored before & who will support me through this :)

Simon 

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About the charity

Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.

Donation summary

Total raised
£1,434.78
+ £295.00 Gift Aid
Online donations
£1,434.78
Offline donations
£0.00

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