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Simon Bolton avatar
Simon Bolton

Simon's Running the UK for Mesothelioma UK page

Running 2 full & 4 half marathons throughout 2017 for Mesothelioma UK because Improving support and access to treatment is vital

118 %
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  • Event: Running the UK for Mesothelioma UK, 23 Apr 2017 to 26 Dec 2017

Mesothelioma UK

We support people affected by Mesothelioma to improve experiences and outcomes

Charity Registration No. 1177039

Story

Thanks for taking the time to visit my JustGiving page. .

Throughout 2017 I will be running in events around the UK to raise awareness of this devastating incurable disease and hopefully generate some much needed funds to support those affected by this asbestos related cancer.

The events below includes 2 full and 4 half marathons. I'll end the year with one final run over a much shorter distance, racing into the icy waters of the North Sea during the festive season!

London Marathon Sun 23rd April

Leeds Half Marathon Sun 14th May

Great Manchester Run Sun 28th May

Durham Coast Half Marathon Sun 11th June

Great North Run Sun 10th September

Yorkshire Marathon Sun 8th October

Sunderland Boxing Day Dip Tues 26th Dec

Mesothelioma is a  relatively rare cancer with around 2500 people diagnosed  in the UK every year. Historically this was a disease  associated with occupational  asbestos exposure however more recently, there has been an increase in the number of people diagnosed  through incidental exposure. Doctors, nurses, teachers and  those who have worked in public buildings  are also at risk and  the numbers of  patients diagnosed in those professions continue to rise.

As yet there is no proven evidence that surgical  removal of the cancer is helpful and there is only 1 approved chemotherapy treatment available on the NHS. Mesothelioma UK is a National charity dedicated to ensuring  that those affected  can access support and   Information on the  most appropriate clinical trials and treatments available. The charity also funds  vital data collection and research with the aim of  improving outcomes for mesothelioma patients and their families.

With such few approved treatment options, it's not uncommon for people to seek out anything that might help improve their symptoms and indeed increase their chances of longer term survival. It's a key role of Meso UK clinical nurse specialists to ensure that patients make informed decisions about accessing treatment and avoid the pitfalls of exploring unscrupulous therapies sometimes touted to those desperate to try anything.

It's for this reason I chose the Hollywood actor Steve McQueen as my  profile picture. The story of his illness and death is a fascinating but sad one. It is still relevant today. He died aged just 50 after being diagnosed with mesothelioma. He believed that asbestos used in movie sound stage insulation and race-drivers' protective suits and helmets could have been involved, but he thought it more likely that his illness was a direct result of massive exposure while removing asbestos lagging from pipes aboard a troop ship while in the Marines. 

In 1980 he traveled to Mexico, for unconventional treatment after US doctors told him they could do nothing to prolong his life. Controversy arose over the trip, because McQueen sought treatment from William Donald Kelley, who was promoting a variation of the Gerson therapy that included the use of coffee enemas but described as quackery by mainstream  doctors. McQueen paid for Kelley's treatments at a cost of $40,000 per month ($116,000 today).

McQueen returned to the US after 3 months of treatment. Despite spread of the cancer throughout his body, Kelley publicly announced that McQueen would be completely cured and return to normal life. His condition soon worsened and "huge" tumors developed in his abdomen. He died on November 7th 1980.

Please consider supporting my efforts by either sponsoring me or making a donation to mesothelioma UK.

Thank you

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