Sharon's Paragon skydiving club page

Sharon Hunter is raising money for ROHHAD Association
£40
raised of £500 target
Donations cannot currently be made to this page

Paragon skydiving club · 3 April 2016

ROHHAD Association

Verified by JustGiving

RCN SC045645
We fundraise for ROHHAD Research & Support to improve survival rates worldwide

Story

Thanks for taking the time to visit my JustGiving page.

Hi folks my name is Sharon Hunter , I'm on a mission to raise funds for my nephew Aaron Hunter and others suffering from ROHHAD . I will be doing a sponsored parachute jump 10,000ft in order to help raise funds for the charity in order to raise awareness and hopefully find a cure for this terrible illness.

Children inflicted with ROHHAD appear normal at birth and the onset of symptoms does not begin until after 1 years of age. The symptoms can begin anytime from age 1 to age 7 and the median age for symptoms to begin is 3. Once the symptoms begin it can take many years for the abnormalities to manifest and evolve into the features of ROHHAD.

Please visit this website to read more about ROHHAD .

www.rohhadassociation.com

Date and time to be confirmed but will keep use all updated . Thanks for taking time to read my page X

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About the charity

ROHHAD Association

Verified by JustGiving

RCN SC045645
ROHHAD is a rare life threatening and life limiting condition affecting Children worldwide. The Charity mission is to - Fund and promote research leading to a new understanding of and treatments for ROHHAD, one day leading to a cure. We also offer support to those affected and raise vital awareness

Donation summary

Total
£40.00
Online
£40.00
Offline
£0.00

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