I am Sharon and I’m a patient volunteer with HHT Ireland,on June 11th I will be walking 10km to raise awareness and funds, so that our work in supporting patients and their families can continue … HHT is a rare Hereditary Vascular disease that causes us to bleed spontaneously, with unexplained nosebleeds being a main symptom, but lungs,liver,brain,gastric tract and bowels may also be effected.There is No CURE and only transfusions and certain embolisms to help us …We understand every family is struggling at the minute, and we are extremely grateful for any support at all …. Thank you so much everyone ❤️