I was diagnosed with HHT 3 years ago, however I have suffered with the condition all my life.  The constant nosebleeds, the migraines and im one of the lucky ones, my cousin suffered a stroke in her late 40's and it wasn't till after this happened that she was diagnosed.

Im supporting HHT Ireland as there is still very little awareness in the UK and therefore HHT Uk is still in the pipelines.

The disease is hereditary and it was passed to me by my dad, who was also never fully diagnosed but suffered the very heavy nosebleeds almost every day. 

This voluntary organisation was set up in the memory of the late Grace Nolan and the late Paul Woods. Both children died suddenly – aged 9 and 22 respectively, from HHT in the lungs. It is hoped that no other person should suffer this fate.Awareness is key, so please take the time to learn about HHT and pass the word.HHT Ireland has four core objectives- Raise awareness. - Provide support to affected families.- Advocate on behalf of HHT families for improved services in the treatment of HHT.- Help identify undiagnosed people