SHARON BIRCH
Ehlers-Danlos Zebra Day at Footprints Nursery
Fundraising for Ehlers-Danlos Support UK
Story
Thanks for taking the time to visit my JustGiving page.
May is Ehlers-Danlos Awareness month so at Footprints Learning for Life Nursery, Hartlepool, we will be holding a Zebrathon day to raise knowledge of the condition a nd hopefully some funds.
Our staff and children will be battling against each other by doing an event - Anything You Can Do, I Can Do Better.
How many jaffa cakes can you eat in a minute?
How many star jumps can you do in three minutes?
How many maltesers can you hold in your mouth at one time?
How many pigtails can you make in three minutes?
How many words can you think of beginning with the letter ...?
How many words can you make from this word ... in five minutes?
How many girls names can you think of beginning with the letter ? in three minutes?
How many t-shirts can you put on in a minute?
How many potatoes can you peel in two minutes?
How many nails can you paint in three minutes?
Why the Zebra?
Doctors are taught that 'when you hear hooves, think horses, not zebras' but that means that Zebras, those rare conditions, are often overlooked so diagnosis and treatment if often delayed or missed. EDS is one of those conditions as we aim to raise awareness through our Zebrathon.
"When you hear the sound of hooves, think horses, not zebras."
This phrase is taught to medical students throughout their training.
- See more at: http://www.ehlers-danlos.org/about-eds-uk/why-the-zebra#sthash.xPQ5sM5d.dpufWhy the Zebra?
"When you hear the sound of hooves, think horses, not zebras."
This phrase is taught to medical students throughout their training.
In medicine, the term "zebra" is used in reference to a rare disease or condition. Doctors are taught to assume that the simplest explanation is usually correct to avoid patients being misdiagnosed with rare illnesses. Doctors learn to expect common conditions.
But many medical professionals seem to forget that "zebras" DO exist and so getting a diagnosis and treatment can be more difficult for sufferers of rare conditions. Ehlers-Danlos Syndrome is considered a rare condition and so EDS sufferers are known as medical zebras. This identity has now been adopted across the world through social media to help bring our community together.
- See more at: http://www.ehlers-danlos.org/about-eds-uk/why-the-zebra#sthash.xPQ5sM5d.dpufWhy the Zebra?
"When you hear the sound of hooves, think horses, not zebras."
This phrase is taught to medical students throughout their training.
In medicine, the term "zebra" is used in reference to a rare disease or condition. Doctors are taught to assume that the simplest explanation is usually correct to avoid patients being misdiagnosed with rare illnesses. Doctors learn to expect common conditions.
But many medical professionals seem to forget that "zebras" DO exist and so getting a diagnosis and treatment can be more difficult for sufferers of rare conditions. Ehlers-Danlos Syndrome is considered a rare condition and so EDS sufferers are known as medical zebras. This identity has now been adopted across the world through social media to help bring our community together.
- See more at: http://www.ehlers-danlos.org/about-eds-uk/why-the-zebra#sthash.xPQ5sM5d.dpufWhy the Zebra?
"When you hear the sound of hooves, think horses, not zebras."
This phrase is taught to medical students throughout their training.
In medicine, the term "zebra" is used in reference to a rare disease or condition. Doctors are taught to assume that the simplest explanation is usually correct to avoid patients being misdiagnosed with rare illnesses. Doctors learn to expect common conditions.
But many medical professionals seem to forget that "zebras" DO exist and so getting a diagnosis and treatment can be more difficult for sufferers of rare conditions. Ehlers-Danlos Syndrome is considered a rare condition and so EDS sufferers are known as medical zebras. This identity has now been adopted across the world through social media to help bring our community together.
- See more at: http://www.ehlers-danlos.org/about-eds-uk/why-the-zebra#sthash.xPQ5sM5d.dpuEhlers-Danlos Syndrome
EDS manifests
itself in so many ways that each sufferer is unique, making diagnosis
difficult. When we were diagnosed it was the piece of the jigsaw that was previously missing. It was a light bulb moment - ahh! That's why things broke, dislocated, bruised, didn't work or over-worked, making me bendy. That and more.
We were diagnosed with Ehlers-Danlos Syndrome, a rare genetic connective tissue disorder, in 2004.
Please help us to raise awareness of this condition.
Thank you,
Sharon and Suzie.