My name is Selina Murphy. I am from Cork .  I am a 27 year old person with Cystic Fibrosis.  I was diagnosed at a very early time in my life at 6 weeks old.  All my life i have been very well and class my cf as mild. I havn't been on ivs or in hospital in over 10 +years and that is thanks too my team at cuh and of course science and technology and new studies every year.

When i was about 22 23 i started to wake every morning with this itchy scratchy cough that would not go away no many how many treatments i done huffs i done how much i coughed up and it just got to the point where it was effecting my confidence  and made me miserable thinking this is it , the start to my cf getting worse. But my lung function was still 90s and 100s i just did not know why it was going on. This went on until i reached 26 and at this stage the world was hit with covid and when everyone was scared of what was happening and was afraid of catching it ,that if a person cough people would be a bit frightened or paronied.  As a person with cf , coughing is our normal no matter how bad it sounded . 

Everywhere i went , when i started to cough it made me lose a lot of confidence and of course made me paronied of what people were thinking of me because with my cough it sounded like i was ill.  So i had a think about what to do until i read about the miracle drug named kaftrio.  Kaftrio was known as a triple effect modulator .  It helped with lung function , body weight , fertility and just over all life.  In ireland it was only giving to people under compassionate grounds so i would not have fell into that category . But soon it was released to my category.  But in America it was more out there and the reviews were so amazing that i had to have a think about going on it especially because it would benefit me so much because i also have trouble gaining weight. So i made my decision and decided i try my first time modulator .

Over the course of a few days i done scans , tests , blood tests lung function and finally on tuesday the 13th of april 2021 i took my first dose of kaftrio.  The results speaks for themselves.  I have nearlly clear lungs, i gained weight, have more energy and I dont cough no more. I know i was never very sick but i still feel like this was a second chance at life and April is a whole year i be on kaftrio and its a way to celebrate this.

That being said i wanna give my second chance at life to be able to help one of my favorite charities. The amount of work they do is second to none and the team are amazing . They were so good keeping us entertained and updated over the pandemic. The funds they raise always go towards good meaningful things. For example fertility grants , gym membership grants, councilling grants and the list goes on. 

I am going to walk 6.5 kms eirder by counting my steps each day or just waiting till that day and doing it all at once. I will update my screenshots and pictures each day as proof for this charity.

Thanks for your time for reading this and any questions feel free to ask xx selina