We started our journey in September 2013 when our own Brave Knight, Cameron, became poorly. He was 36th in Europe to be diagnosed with the rare genetic condition XIAP Deficiency. Unfortunately he was unable to keep fighting and lost his battle in May 2014 after lots of treatment at Great Ormond Street Hospital and a bone marrow transplant. Since that day we have vowed that we would raise as much money as we can to fund research into the condition and treatment to help other boys and families across the world.