I will be running the Berlin Marathon on Sunday 25th September and the London Marathon the following weekend on Sunday 2nd October in memory of my mum. Beautiful, brilliant and brave Ethne.
I am aiming to raise as much money as possible, with your help, for the Motor Neurone Disease Association (MNDA).
The Motor Neurone Disease Association (MNDA) is a charity which provided help to mum throughout her illness - from support workers, to essential equipment which made mum's life a little easier as she declined.
The MND Association needs support to continue to help others living with MND. Crucially, we must fund research and find a cure for motor neurone disease.
MND slowly, insidiously, stole life from mum over 4 years. It chewed her up and spat her out. At the same time, it ripped my heart out and irreparably broke it. I still cannot believe that, in this day of science and modern medicine, we do not have a cure for this horrific disease.
MND put mum in a wheelchair, it stopped her eating, talking, walking, moving, breathing. Moreover it stole her enjoyment of life, her voice, her conversation, her freedom, her independence, her pleasures, her basic functions. It took her dignity. It stole her peace. It relentlessly destroyed her in front of our very eyes. And we were powerless to stop it. I witnessed mum's daily decline at the hands of MND yet still can’t fully comprehend how she coped with the unimaginable fear she faced every second of the day. Yet she smiled. She fought. Everyday. I truly believe she carried on for us. Likewise, through the trauma that MND inflicted on all of us, we carried on for her. When hope was lost, I believe our love, combined with her spirit and strength of character, kept her alive when modern medicine failed her. Nobody deserves to go through the, quite frankly, disgusting pain and slow death my mum did, nor the trauma that we suffered.
Before MND totally stole mum's voice, she told me she didn’t want to die - because she’d miss us too much.
I heard a song lyric that says you die twice - ‘once when you go to the grave, and the second time is the last time that somebody mentions your name’. I will always say her name, please join me - beautiful, brilliant and brave Ethne.
Her beautiful smile will forever be imprinted in my mind. Her brilliant light will forever shine in my heart, and her bravery will forever be my strength.
I miss my mum beyond measure. There is an emptiness in my chest.
When I run, every step is for my mum, and for those living with this awful disease. There really is no finish line until we find a cure.
Mum died in August 2021. At the time of writing this, she has been 10 months gone.
I truly appreciate any sponsorship you can pledge in the fight against MND. Thank you, from the bottom of my heart.
Sarah x
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