Fundraising for Fergus
Fundraising for Spinal Muscular Atrophy (SMA) UK
Fundraising for Spinal Muscular Atrophy (SMA) UK
With the help of our family and friends we've been raising money for Fergus' Angel Fund for over ten years. Amazingly, the money still keeps coming in and we're now over the £52000 mark!
A huge thanks to everyone who has supported us over the years. Most recently, we want to say thank you to the wonderful Ann Hales-Tooke who chose to receive donations to Fergus' fund in celebration of her 90th birthday. We also want to say thank you to everyone who sponsored Angela for her half marathon. You are making such a difference to those affected by SMA and SMARD.
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You can find information about SMARD1 (the rare genetic disease which Fergus died of) here: https://smauk.org.uk/spinal-muscular-atrophy-with-respiratory-distress-1-smard1-page
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