Story
I did my first ever 10k a few years back to raise money for Cystic Fibrosis as my younger sister Mollie suffers from the condition........
Well I have decided to raise some money again but this time put myself through some challenges to hopefully raise a decent amount.
Mollie turned 18 in 2016 but would be fair to say that this has been the hardest year for her having CF.
Here is Mollie's daily routine as an 18 year old with CF in her own words.
My name is Mollie I have Cystic Fibrosis. My usual day:
- Up at 6.30am to detach feeding tube from my stomach as need to take on calories overnight to ensure my body gets the nutrients it needs to function. Take 6 capsules of Creon to help my body absorb the feed.
- Overnight I will often wake because of coughing fits which result in bringing up mucus from my lungs although this can also induce vomiting.
Getting out of bed in the morning also guarantees a coughing fit. - First nebuliser which aids the loosening of mucus, followed by around 30mins on a machine which forces air into my lungs, again to loosen the mucus, which is bought up through coughing - again risks vomiting.
- Then I have a second nebuliser of an antibiotic followed by a nasal rinse (forcing warm water up each nostril, feels like you're drowning).
- Then the tablets - currently taking 10 of one kind or another (vitamins, steroids, antibiotics, anti-sickness, anti-fungal).
- Prior to breakfast I have to inject myself with insulin as I am also diabetic (common with CF people) and take more Creon capsules with breakfast.
- Due to CF making it difficult to maintain a healthy weight I need to eat every 2hrs (taking Creon capsules each time). In total probably take 50-60 tablets and capsules a day.
- Also as my lungs are not too good I am on oxygen 24/7 which can make something as simple as going to college a challenge as need to carry oxygen tanks everywhere and it can be depressing noticing how people stare.
It should be noted that all of the above, which is repeated in the evening and sometimes during the day, is all based around prevention not cure. If I pick up an infection, most of which are naturally forming and not a risk to non-CF sufferers, then the above is increased and can involve long hospital admissions.
So the challenges I am doing for Mollie are split across March, April and May and are as follows;
Sat 12th March - 10k run (Crammond, Edinburgh)
Sat 8th April - 5.7k Edinburgh's Toughest 1091ft climb (Arthurs seat)
Sun 9th April - 13.1 Kilomathon (Edinburgh)
Sat 27th May - 98km Cycle from Glasgow to Edinburgh
Sun 28th May - Edinburgh Half Marathon
I don't expect to be very mobile on the Monday after the weekend in May, although the pain will be temporary compared to the day-to-day life of a CF sufferer.
Thank you for any donation you can give.
Rusty