Christian Rolfe

Christian's page

Fundraising for Hope for Hasti
£570
raised of £1,000 target
Donations cannot currently be made to this page
Event: London Marathon 2021, on 3 October 2021
Hope for Hasti

Verified by JustGiving

RCN 1188769
We raise funds and commission research to create a gene therapy for CdLS

Story

Hi all,

I will be running the London Marathon this year and have chosen to support the ‘Help for Hasti’ charity.
This is my first marathon and I was lucky enough to win a place in the ballot.
On my training runs I have been listening to podcasts and I happened to listen to Ian Wrights ‘Everyday People’ The story of the Barefoot Major and his fight to save his daughter. His story really struck me as a father I want to use my marathon place to help support him, his daughter and their charity.

I would love you to listen to the podcast – https://podcasts.apple.com/gb/podcast/chris/id1549385121?i=1000515206509

And I would love it even more if you could sponsor me…

Hope for Hasti 

CDLS is a rare genetic condition that presents children with a wide range of difficult physical and behavioural challenges.Hope for Hasti is funding cutting-edge research to develop a gene therapy for this rare condition which will dramatically improve their quality of life.Working closely with some of the brightest minds in genetics, we can change the lives of the children affected by this illness. To achieve our goal, we need your help.

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About the charity

Hope for Hasti

Verified by JustGiving

RCN 1188769
Hope for Hasti is a charity focused on the development of a gene therapy for Cornelia de Lange Syndrome (CdLS), to improve the quality of life of those living with this rare and little known genetic condition. But those that live with CdLS deserve hope, and we aim to give it to them.

Donation summary

Total raised
£570.00
+ £125.00 Gift Aid
Online donations
£570.00
Offline donations
£0.00

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