Thank you for taking the time to click on this link for 100 miles for May challenge. May is Prader-Willi awareness month and this is a charity that has grown extremely close to my heart after my best friends little boy Jaxson was diagnosed at only a few days old. I watched as my friend and her partner were thrown so many challenges and difficulties from the day he was born as they've fought with every oz of their being to give that little man a fighting chance at what is a very tricky and complex syndrome... BUT... Jaxson has absolutely SMASHED the obstacles and is continuing to develop with the assistance of intense physio sessions and growth hormones. This is why this charity is so important. The more research that is done into PWS, the more fighting chance it gives these amazing individuals into thriving in life.

So, what is Prader-Willi syndrome?

There is a 1 in 15/20,000 chance of being born with PWS. It is a rare genetic disorder that can be life limiting and cause a variety of issues such as low muscle tone, mild to moderate learning difficulties, weak bones and Hyperphagia which is where the receptors in the brain don't tell the individual they are full, thus being in a constant state of hunger which can lead to obesity ans other major health issues if not managed correctly.

Any donations will go towards the research charity to help gain further understanding of this extremely complex condition.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity.