We support affected individuals & families to raise awareness of MPS diseases
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April 25th I will be setting of on an epic cycle ride over the Pyrenees mountains into Barcelona. Then I will be changing up my training to run a half marathon up snowdon. All the proceeds will be going to the MPS Society.
Mucopolysaccharide (MPS) and related diseases affect 1:25,000 live births in the UK. One baby born every 8 days is diagnosed with an MPS related disease.
These multi-organ storage diesels cause progressive physical disability and in many cases neurological deterioration which can result in death in childhood.
At present there is no cure for the devastating diseases, only treatment for the symptoms as they arise.
My dear friends daughter suffers from MPS. It is a great pleasure to raise money for this charity.
Come onnnnn LETS SMASH IT!!!!
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The MPS Society provides professional support to children, adults and families affected by MPS, Fabry and related Lysosomal Storage Diseases and funds research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions.