Richard's page
on 2 June 2010
on 2 June 2010
You know me, I don't like heights, I don't like organised fun, I don't like being strapped tightly to men and i can't grow a moustache. Because of this I have decided to do a skydive for charity (yes it is a little selfish because i get to do a skydive) and a great charity as well. The skydive takes place on the 17th July in the sky above Oxford so we haven't got much time to raise as much money as possible! My target is £500 (plus my personal donation of £185, so £685))
I found out about the charity through a work colleague and decided that this is where i would focus my fundraising as i had not been able to attend any of the great events friends and family had put on previously and believed this would be the best way for me to help. Below this rambling is Stellas story and reason why the need for me to raise as much money as possible exists so that she can continue to receive the therapy she desperately needs.
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Two-year-old Stella Rogers, who at just 17 months old, was diagnosed with a rare
type of cancer could be considered one of the lucky children despite all her suffering.
The regime to clear her cancer (taking up a quarter of her short life) has been a long
and truly brutal one, but so far she has fought her illness every step of the way and
her devoted parents have succeeded in taking her to the USA to obtain a lifesaving
antibody treatment that will stop her from relapsing.
‘Without this therapy our little girl will not survive,’ says mother Allison Hyde, a former
A&E Nurse. ‘Most of the children with this type of cancer do relapse and, in the UK
anyway, they are only offered palliative care.’
Allison, her partner John Rogers, friends and family have all been desperately
fundraising to raise the £250,000 needed to pay for the costly treatment, but despite
incredible efforts they had raised only £40,000 of their total as the deadline for the
start of treatment loomed. For antibody therapy to work, it is necessary for the patient
to start it no more than 100 days after a stem cell transplant (part of the regime to
clear the cancer).
Luckily for Stella, the neuroblastoma charity, 2simpletrust, stepped in to help. On
Tuesday Februrary 2, just a week before the deadline arrived, Stella and her family
found themselves on their way to the USA to start Stella’s treatment at the Children’s
Hospital of Philadelphia. The 2simple Trust provided an emergency, interest-free
loan for the deposit on the £250,000, thus giving the family’s fundraisers the chance
to carry on raising money throughout Stella’s six-month therapy as well as the time to
repay the loan and fund the rest of the treatment. This has meant that Stella has
been able to start the therapy at the point when it is most effective. So, unlike some
of the poor children afflicted with this terrible disease, she is fortunate to have a much
improved chance.
But there is still a lot of money to raise. The family’s website www.forstella.org details
all kinds of events that are going on from skydiving and marathon running to singing
and swimming, face painting and cake baking. Donations have ranged from £2 to
£5,000 and so many people have stepped forward to give their time. The youngest
fundraiser is just four years old.
‘If lots of people gave just a little,’ says Allison. ‘We can save our daughter, who has
shown that she has a true fighting spirit and so wants to live. We are so grateful to all
the many people who have made such a big difference. If it wasn’t for their support it
would have been difficult to get this far – and we have made it a very long way!’
Editor’s note: Antibody therapy is a revolutionary treatment, but has been available
in the USA, Canada and Australia for some time with proven results, raising life
expectancy for neuroblastoma sufferers from low (perhaps just 20% to 40%) to
something significantly better (perhaps 60% to 80%). With this therapy, antibodies
are injected into the blood stream and travel around the body attaching to any
neuroblastoma cells that they find. The body’s immune system can then identify the
cancer cells and attack and kill them.
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The cost of the skydive is £185 and normally this has to be raised by fundraising but i have decided to pay this myself so that all money that you guys give can go to Stella without paying for me to have fun.
Finally, even if you don't know me that well or don't want me to jump out of a plane please give generously as the money raised will be truly appreciated by me, Stellas family and most importantly Stella.
If you have any questions about the skydive or the charity please contact me and I will be more than happy to respond or provide you with contacts at the charity so maybe you could also plan a fundraising event!
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