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We are raising money for The Sandcastle Trust in loving memory of Felix.
Felix passed away at only 9 years old on 30 March 2022 and has left a huge hole in our hearts. He is so missed. Felix was absolutely bonkers and so so loved by everyone that ever met him.
In his memory at this difficult time we wish to help other families living with rare genetic conditions 'make memories' together by supporting this fab charity.
Since 2016 The Sandcastle Trust has been walking alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience. The Sandcastle Memories programme forms the core of The Sandcastle Trust's work and provides family respite to families affected by a rare genetic condition. The impact is not short lived; it helps carers to maintain their quality of care and generally provides a positive focus which can empower families with a new enthusiasm and strength to deal with the often ongoing daily struggles of illness, gruelling hospital treatment and sometimes a devastating loss. However, the cost of UK based short breaks has rocketed since the pandemic and The Sandcastle Trust is struggling to meet the demand which is why I am supporting their appeal to purchase their own accessible holiday lodge.