What we are doing:

Sunday, December 27th, starting at 2pm EST/7pm GMT SN_Rece_Davis and SN_SleepyGrumpyCat will be undertaking a 24 hour gaming stream on Twitch.

https://twitch.tv/SleepyGrumpyCat

https://twitch.tv/sn_rece_davis

We will be raising money towards family support resources for those affected by Rett Syndrome as well as speading awareness about Rett Syndrome.

Within this time, we will be playing multiple games, including, but not limited to; PUBG, Phasmophobia and Among Us to keep our viewers entertained and engaged. We will also be doing multiple giveaways. 

For all our friends that’ll be joining the games we’ll be utilizing game queue.

Why we are doing this fundraiser? 

Rett Syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of a child’s life; their ability to speak, walk, eat, and even breathe easily. Rett Syndrome is usually recognized in children between 6-18 months as they begin to miss developmental milestones or lose abilities they had gained.  Symptoms may include loss of speech, loss of purposeful use of hands, loss of mobility and muscle tone, seizures, scoliosis, breathing issues, sleep disturbances, and slowed rate of growth for head, feet, and hands. 

Lily-Ann, SleepyGrumpyCat’s beautiful 12 year old daughter, developed symptoms and was diagnosed with Rett Syndrome at an early age. She never learned to walk, talk, crawl or even sit up properly. She has spent a lot of her life in and out of hospital, initially with seizures brought on by epilepsy associated with Rett Syndrome, and later, with many chest and breathing complications.  She uses a  Bi-Pap (a breathing apparatus) every night to help keep her breathing safely. Because of Rett Syndrome, Lily-Ann is unable to eat safely and must be fed by tube directly into her stomach. Her primary mode of mobility is a specialized wheelchair and a rig to help her stand. All of these medical devices help in the daily care of Lily-Ann, as well as other such individuals with Rett Syndrome. It is vital to continue research efforts, raise awareness, and help families in need. 

Rett UK fundraises and finances research towards treatments, as well as offering specialised staff to help families face the difficulties of this disorder. They finance clinics held in London, where patients can seek expert advice from the top doctors specialising in Rett Syndrome.

Both of us would like to say a huge Thank You for all of the love and support given to us whilst we are holding this event.