Thanks for taking the time to visit my JustGiving page. It means so much to me as my dear dear friend was irreversibly touched by EB when her baby son was born with the condition in 2008 and lost his battle to it last Christmas.

Please give whatever you can - and remember please tick the gift aid. Thank you.

Debra is dedicated to finding a cure for EB, which affects 1 out of every 50,000 live births in the United States today. EB is a genetically based disease characterized by chronic, painful blistering. The skin and mucous membranes are so fragile that the slightest touch can cause severe blistering inside and outside the body. Present at birth, EB affects men and women of all races and ethnic groups and sometimes, when there is no family history, it occurs as the result of a spontaneous genetic mutation. Today, there is no cure or treatment for EB, except daily wound care and bandaging. Genetic research is making progress towards treatments and a cure.eand if you would like more details please visit www.debra.org

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.