Rachel Hardy

Rachel 's Tuberous Sclerosis Page

Fundraising for Tuberous Sclerosis Association
£150
raised
Donations cannot currently be made to this page
In memory of Tony Jennings (my Dad)
We fund support and research to provide help today and a cure tomorrow.

Story

Hi there,

Thanks for taking the time to visit my JustGiving page.  I will be running the Belfast City Marathon on 3rd May 2010. I am running in memory of my dad.  Alongside raising money for Marie Curie Cancer care I am also raising money for a genetic Conditiion called Tuberous Sclerosis Complex (TSC). This page is dedicated to donating money to the Tuberous Sclerosis Association.  I am sure most of you know that I work as a Genetic Counsellor with the Northern Ireland Regional Genetics Centre.  In my role I provide information and support to people and families affected by both rare and common inherited disorders like TSC. 

TSC is a complex genetic condition caused by an alteration in a gene.

People with TSC have growths in different organs of the body (brain, heart, eyes, skin, kidneys, lungs) and may have epilepsy, learning disabilities, autism spectrum disorder and kidney problems.

Symptoms vary from one person to another with some people showing very few symptoms and others more severely affected from birth into adulthood.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Thank you for your support and please feel free to come and cheer me on if your free on May day.

Thanks

Rach :-))))))

 

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About the charity

As the only UK charity focused on Tuberous Sclerosis Complex (TSC) we : • Improve the health/wellbeing of people living with TSC and their families/carers • Lead research into technologies and treatments to reduce TSC’s impact • Lead innovation into medical and social care service integration

Donation summary

Total raised
£150.00
+ £42.31 Gift Aid
Online donations
£150.00
Offline donations
£0.00

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