We are fundraising to raise money for Grace Beverton who has been diagnosed with a rare gene mutation. 

We will be doing different Road trips throughout the summer and attending various events and fundraisers for Grace and we will be finishing our fundraising with our grand finale Road trip across Europe incorporating 9 different countries in just 4 days and covering over 2,000 miles across some of the most amazing roads in Europe offering breath taking views of the landscapes and mountains. 

We will set off from the uk on the 15th August to France then the following day we will set off on our adventure to Belgium, Luxembourg, Germany, Austria, Switzerland, Italy, Monaco and back into France.

You can keep up to date with all our movements by following our Facebook page 

https://www.facebook.com/profile.php?id=61553825846231

You can also keep up to date with all Grace’s adventures and Fundraising events by following her page 

https://www.facebook.com/HopeForGraceBeverton

Grace’s story

Six-year-old Grace, started having severe seizures in 2018, aged five and a half months.

Following several frightening hospital admissions and a barrage of tests, she was finally diagnosed with a mutation of the gene RHOBTB2 (x.1448G>A) following consultation with a genetics specialist at Great Ormond Street Hospital.

Her family and supporters fundraise constantly to fund therapies and equipment which are not available on the NHS.

Grace cannot walk or talk, and as there are so few cases like hers it is difficult to know how she will develop.

The current aim is to fund specialised and intensive physiotherapy sessions to help Grace sit unaided.

Longer term goals might include milestones such as bearing weight on her legs or even standing and walking.

There is also likely to be specialist equipment needed, as well as possible adaptations to the family home.

Grace’s family is being supported by children’s charity Tree of Hope which helps families fundraise for children with healthcare needs, and provides charity status to benefit from Gift Aid.