Story
Updated on Oct 17th 2010 at 5:13 PM from the JustGiving API
It's done. All four of us finished. Will post the times up later.
Sonny Garner was born on 18th July 2006. When he was three days old we discovered that the has a very rare genetic condition called Cornelia de Lange Syndrome (CdLS). The news came as a bombshell to the whole family.
He is now 4 years old. He will always be small, has learning difficulties and hearing problems. He is able to crawl and we hope that in the future will learn how to walk independently. He is a real character and has a brilliant laugh!
The CdLS Foundation have helped Sonny's family by providing information and support whenever needed. They carry out vital research into the condition and hold conventions so that families from all over world can meet each other and discover the latest information from medical experts.
The CdLS Foundation has details of more than 300 children and adults with the syndrome in Britain and Ireland, and more than 2,000 worldwide. To find out more visit www.cdls.org.uk.
On 17th October 2010 James (Sonny's Dad), Pete and Rachel (his Uncle and Aunty) and Cath (close family friend) are running the Cardiff half marathon to raise money for, and awareness of the CdLS Foundation.
Any donations, big or small will be greatly appreciated. Thank you. x
*****PAGE UPDATE: We can't thank everyone enough for the support so far. We managed to break our original £500 target in 9 days!*****
***** PAGE UPDATE: and the £1000! Starting to think that £1500 is within reach.*****