September is Children's Cardiomyopathy Awareness Month and the time to raise awareness of pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease. Join me and Team CCF during the month of September as I Walk for Cure to support children with cardiomyopathy and their families.

In August 2015 at 37 weeks along in our pregnancy, we learned that our son had a heart defect.  We delivered Noah at the Children's Hospital of Philadelphia (CHOP) on September 10th, 2015.  He was a beautiful, brave baby boy.  Noah was diagnosed with hypertrophic obstructive cardiomyopathy (HOCM) and fought very hard to stay in our loving family.  At 3 weeks old, Noah was gifted a new heard and underwent heart transplant surgery.  Unfortunately the new heart did not function properly and our sweet baby boy passed away on October 3, 2015.  Our family is unbelievably devastated.  In efforts to help other families struggling with cardiomyopathy and to honor son, we are partnering with the Children's Cardiomyopathy Foundation (CCF) and organizing a hometown walk to raise awareness and funds for pediatric cardiomyopathy.