Updated on Apr 12th 2012 at 8:54 AM from the JustGiving API

My snowdon trek is being done 28th April, plz keep the sponsors coming xx

Updated on Feb 27th 2012 at 9:21 AM from the JustGiving API

Pls sponsor me!!! All in aid for Amelia rose x

Updated on Feb 21st 2012 at 6:45 PM from the JustGiving API

Come on peeps get your sponsors coming, every penny helps. Amelia is only 6 yrs old & terminally ill, read the link !!

Updated on Feb 21st 2012 at 6:40 PM from the JustGiving API

Come on peeps get sponsoring!!! Amelia is only 6 and terminally ill!! Every penny helps for the research they need xx

Updated on Feb 16th 2012 at 9:55 PM from the JustGiving API

Come on guys, need more sponsors!!! Pls :-)

Updated on Feb 9th 2012 at 7:59 AM from the JustGiving API

Please read the link and sponsor me, every little will help. Thanks x

Updated on Feb 9th 2012 at 7:43 AM from the JustGiving API

Please read the link and sponsor, every little bit will help! Thanks xx

Updated on Feb 7th 2012 at 7:58 PM from the JustGiving API

Read the link & sponsor me pls!! :-)

Updated on Feb 7th 2012 at 7:55 PM from the JustGiving API

Please please read the link & sponsor me :-) x

Thanks for taking the time to visit my JustGiving page.

 

I am doing a charity walk up mount Snowdon on the 31 of March to raise money and awareness for battens disease. I will be taking the Watkins path, 7 hours walking up and down. I will be covering 10 miles. The Watkins path is the hardest route ascending 3,300ft of the 3,560 ft.

Battens disease is cruel, devastating and fatal illnesses that slowly takes every skill, sight, walk, speech, and swallow until uncountable seizures finally make the brain and body take no more.

My friend Beverly’s daughter Amelia Rose was clinically diagnosed with this disease in November 2010. At the age of four Amelia started having seizures then In July 2010 Amelia was rushed into hospital after having an ongoing seizure and loss of swallow. Amelia had a feeding tube fitted but she continued to have uncontrollable seizures which put Amelia in intensive care, then a coma for 8 weeks. At this point doctors were asking Bev to think about terminating her life.

Amelia was born healthy, only 18 months ago Amelia was running around, playing, talking, like any other child. Now Amelia is aged 6, this cruel horrible disease has taken almost everything from her, her mobility, her vision, her ability to eat or drink and her voice, however her personality and the sparkle in her eyes remain strong. Amelia is totally dependent on adult care for everything now.

Please sponsor me. This is a terrible disease; they need to find a cure. It may not happen in little Amelia’s lifetime but in the future to help other innocent children diagnosed each year.   

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