This page has been set up in loving memory of Nicole Joy Pisani Frame and her son, Robert Louis Frame.

 

Nicole was 27 years old when she passed away on September 28th 2011 at the Westchester Medical Center in New York, surrounded by her family. Her unborn son, Robert Louis Frame died in the womb and became an angel on September 19th 2011.

 

Nicole was born with the genetic disease Cystic Fibrosis (CF) and it was as a result of this that she and her unborn son passed away. However although she had CF, it did not have her. She had a tremendous love for life, her family and her beloved husband Robert. Nicole’s life-long dream was to become a mother, a dream which seemed to be coming true earlier this year when she found out she was expecting her long-awaited, precious son.

 

During the 21 days that Nicole fought for her life and that of her unborn son, her story touched people all around the world and brought them together in love and prayers for Nicole and baby Robert’s lives. We hope that this page will offer those who were touched by Nicole’s story, an opportunity to help find a cure for Cystic Fibrosis so that in the future no one will have to go through what Nicole and her family went through in order to try to achieve their dreams.

 

All funds raised from this page will go towards the urgent CF Trust £6 million Gene Therapy Appeal which has just 4 weeks left to run.

 

Gene therapy holds the potential to transform the lives and outlooks of CF patients across the world. After  10 years of research, scientists are now ready to proceed with a multi-dose trial in Spring 2012. However there is a £6 million shortfall in funds needed to enable this trial to go ahead. Without the funds in place by the end of October 2011, approval will not be given for the trial to go ahead.

 

Nicole and her family worked tirelessly to raise funds towards finding a cure for Cystic Fibrosis. Please donate to this appeal in memory of Nicole and baby Robert and to ensure that one day CF will not take such special young lives.

 

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