Story
My daughter Mya-Grace was diagnosed with Crohns in 2011 she has since been admitted into hospital at least twice a year.
The medications she has been prescribed such as pentasa, azathioprine, and prednisolone are prescribed to ease the symptoms of the inflammation as it is said there is no cure, although none of these have actually worked. She was also on a milkshake only diet which she had to be fed through a tube in her nose.
Recently we discovered Mya-Grace had a mycobacterium infection this is after I pushed for her to be referred to an infection specialist she was then prescribed two antibiotics for three months.
The outcome has been amazing for the first time she is actually well with no stomachs complaints at all she is growing in height and weight I am buying her clothes for her age for the first time in years.
I want to help raise money for the vaccination as I really do believe it is the cure and I want to see my beautiful daughter live a normal and happy life again without taking these medicines that do very little and have awful side effects
Crohn’s MAP Vaccine is an awareness and
support group comprised of members of the
Crohn’s Community. Our mission is to find a
cure for Crohn’s Disease. We believe the best
hope for that cure lies in the Vaccine developed
by Prof. Hermon-Taylor...
What is Crohn’s Disease?
Crohn’s Disease is a debilitating and aggressive
form of Inflammatory Bowel Disease. It affects
around 5 million worldwide, including 1.2 million
in the USA and over 100,000 in the UK –and
numbers are increasing, especially in children.
Symptoms include chronic severe abdominal
pain, weight loss, bloody diarrhoea and fatigue.
Up to 80% of patients will need surgery at some
point in their lifetime. There is currently no cure
and the lives of most sufferers are blighted by
multiple hospitalisations, surgeries,
immunosuppressive therapies (and their side
effects) and difficulty holding down a job or
attending school.
The Research: Professor John Hermon-Taylor
(King’s College London) is an expert in Crohn’s
Disease who has been researching its cause for
over thirty years. He strongly believes that
Crohn’s Disease is caused by a bacterium
called Mycobacterium avium subspecies
paratuberculosis (MAP) – a distant cousin of
Tuberculosis. Controversially, MAP is most
commonly passed to humans through cow’s
milk. Professor Hermon-Taylor has invented a
modern therapeutic vaccine against MAP which
he believes holds the best hope of a cure for
Crohn’s that there has ever been. It is designed
to stimulate the body’s own immune system to
selectively eliminate MAP-infected cells. This
vaccine is currently sitting in a freezer in a
research institute, awaiting the funding to take
it from the lab to the clinic.
Every penny counts and no donation is
too small! Help raise awareness:
- Like us on facebook: https://www.facebook.com/crohnsmapvaccine
- Follow us on twitter: @CrohnsVaccine
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.